Other common tumours

Useful Information about

Other Common Brain Tumours

We’ve focused on the most common types of brain tumours in other pages in this section, but here is some detail on four other types. These tumours can still impact lives significantly and deserve greater awareness.

Remember, if your child has been diagnosed with one of these brain tumours, OSCAR’s is here to help you on this journey.

Pilocytic Astrocytoma

These are low-grade (not aggressive) and therefore slow-growing tumours. These usually develop in the optic nerve and the back of the brain in the cerebellum, which controls balance and coordination. These tumours develop from star-shaped cells called astrocytes. Pilocytic Astrocytomas rarely spread to nearby tissues, but the tumour can press against the central nervous system in the brain, which can cause problems.

The most common symptoms are:

  • Seizures
  • Nausea and dizziness
  • Issues with balance
  • Double vision
  • Personality or behavioural changes
  • Feeling fatigued and weak

In cases where the tumour is small and not causing any symptoms, doctors may choose to just observe it.

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Optic Pathway Glioma

These are a type of pilocytic astrocytoma. These brain tumours affect the optic nerves, which carry information from the eye to the brain. It is commonly slow-growing but as it does it presses on the optic nerve causing the child’s vision to worsen.

The most common symptoms are:

  • Blurred or double vision Loss of peripheral vision
  • Abnormal eye movements (nystagmus)
  • Eye misalignment (strabismus)
  • Headaches
  • Behavioural changes
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Atypical Teratoid / Rhabdoid Tumour

These are very rare, high-grade (aggressive) tumours that develop in the cerebellum or brainstem at the back of the brain.They usually occur in children aged three years and younger. As with all tumours, the exact symptoms depend on the child and the size and location of the tumour.

The most common symptoms are:

  • Headaches, particularly in the morning
  • Nausea and vomiting
  • Fatigue and a lack of energy
  • Loss of balance, lack of coordination, or trouble walking.
  • Baby’s head getting bigger (macroencephaly). This can occur in very young babies as the bones in their skull have not fused yet
  • Irritability or behavioural changes
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CNS Germ Cell Tumours

This is a rare type of cancer that develops from cells called germ cells. These cells are responsible for producing eggs in females and sperm in males. Germ cell tumours are most commonly found in the reproductive organs like the ovaries or testicles. However, they can also occur in other areas, such as the brain. They occur most often in 10 to 19 year olds. The most common place for CNS germ cells to occur in the brain is in the pineal gland or just around the pituitary gland.

Symptoms can include:

  • Fever
  • Early puberty
  • Issues with breathing
  • Chest pain
  • Trouble with eyesight
  • Pain in the lower spine
  • Increased thirst and urination
  • Increased hair growth.
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Choroid Plexus Carcinoma

Choroid plexus tumours develop from a type of brain tissue called the “choroid plexus.” This tissue lines a part of the ventricles (hollow spaces) in the centre of the brain and produces cerebrospinal fluid (CSF fluid). In children, they are most common in the first year of life, but can occur at any time.

Symptoms can include:

  • Fever
  • Early puberty
  • Issues with breathing
  • Chest pain
  • Trouble with eyesight
  • Pain in the lower spine
  • Increased thirst and urination
  • Increased hair growth.

Read more about the different signs and symptoms of brain tumours – Click here

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What kind of tests will my child have?

To diagnose precisely, your doctor will run some tests to figure out the size and location of the tumour.

The tests could include:

  • An MRI scan and/or CT scan
  • A neurological examination
  • A biopsy

Read more about the different tests for brain tumours – Click here

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Common tumours: What treatment will they have?

A specialist medical team will put together a tailored treatment plan for the astrocytoma based on your child’s unique needs, which may include the following:

  • Surgery
  • Radiotherapy
  • Chemotherapy

To read our section on the different types of treatment – Click here

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Please get in touch with us if you wish to find out more about the type of brain tumour your child has been diagnosed with, whether it is mentioned here or not.

Do you need any help or assistance?

common tumours under research

Rachel James

Community Fundraising Assistant
Rachel will join our team on September 1st and will be doing a wide range of tasks including promoting the charity in the local community, developing relationships with different people and organisations, and finding new fundraising opportunities. She comes from a caring background having been a teaching assistant and emotional literacy support assistant in York for many years, and previously leading a community care team. She has also done many years of work in the voluntary sector.

Matthew Taylor

Trustee

Matthew Taylor is Director of the York Health Economics Consortium at the University of York. He has been a supporter of OSCAR’s since its inception and, through his twenty years of research into the measurement of health-related quality of life, Matthew is keenly aware of the huge benefits that new treatments can bring to people living with brain tumours.

Matthew is actively involved in national-level healthcare decision making, having had former roles as the Scientific Director of the National Institute for Health and Care Excellence (NICE)’s Economic and Methodological Unit and as a committee member for NICE’s Public Health Advisory Group. He has over fifty peer-reviewed scientific publications, including a chapter in the textbook ‘The Business, Policy and Economics of Neurosurgery’.

Ryan Mathew

Clinical Trustee

Ryan Mathew is an Associate Professor at the University of Leeds and an Honorary Consultant Neurosurgeon at Leeds Teaching Hospitals.

The Hughes Family story had a big impact on Ryan. He first learnt of the charity when he became surgeon to Oscar’s dad, Ian. After a successful surgery, he continued to show great care and concern for the family when Ian became ill again and when Milo, Oscar’s brother, was diagnosed with a brain tumour. Ryan is driven to make life outcomes better for brain tumour patients and their families. His extensive work in both research and surgery is testament to that commitment.

His clinical practice covers the full spectrum of general neurosurgery with a subspecialty in brain tumours. His research focuses on advanced brain tumour models, residual therapy-resistant glioma cell populations, local therapeutic treatments and surgical technologies and devices. He peer-reviews for several journals and grant award committees and has published numerous papers.

More information on Ryan’s work

Lisa Dawson

Trustee

Lisa has been a friend of the Hughes family since 2016 and was honoured to be asked in 2022 to represent OSCAR’s PBTC as Social & Digital Trustee.  Both Lisa and her family have taken part in numerous fundraising events and are dedicated to raising awareness of paediatric brain tumours.  Lisa is a social media content creator, blogger and writer and lives in York with her husband Joe and three children, Ella, Max and Leo.

Alice Beckwith

Trustee

Alice has been involved with OSCAR’s PBTC since 2020. She passionately supports the aims of the charity and believes that if the charity can change one life for the better, then it is a success. Working in the public sector for 18 years, Alice has helped transform Adult and Children’s Social Care Services by ensuring heavy investment in preventative services. This is why the impact OSCAR’s work will have on families is at the forefront of Alice’s motivation to be involved.

As partnerships trustee, Alice is keen to involve businesses, trusts and individuals in the work OSCAR’s does and show them the role they can have in providing the base for the charity to continue to expand its projects to help children with brain tumours.

Sarah Jane Gray

Trustee/Secretary

Sarah has over 20 years of experience in the pharmaceutical and surgical sales sector and is very familiar with the importance of medical advancements for better patient outcomes. She believes research is essential for improving diagnosis, treatment and prognosis for all children with brain tumours and hopes OSCAR’s PBTC can offer much needed funding to help push the boundaries in finding better ways of curing this devastating disease. Sarah’s focus as a treasurer will ensure record-keeping and accounts meet the conditions of the statutory bodies and compliance with regulatory organisations.

Holly Dixon

Trustee

Holly is mother to George, diagnosed with an ATRT brain tumour in 2022, and works as a primary school teacher. She believes that action to support others -however small- can make a massive difference.


She brings real-life experience of what it is like for a parent navigating everyday life, the NHS, the education system, questions from people and a lively young child with different needs.

meet the oscar's team

Sam Marino

Trustee

Marie Hughes

ChAIR OF THE BOARD OF TRUSTEES

Marie founded the charity with her husband Ian, who passed away in 2020. She is the mother of four boys. Two of Marie’s sons have died from different types of brain tumours – Oscar who was 9 and Milo who was 5 years old. She is determined to help find better treatments for brain tumours so other children won’t have to go through what her own sons and her family have.

Marie is Chair of the Board of Trustees, working closely withe the team on strategy and vision. Marie lives in Copenhagen with her two other sons, Sebastian and Lucas, and works as a Risk Manager on the Danish railway.