A family fundraising first

When Ellia Smith and her family decided to take on fundraising for OSCAR’s, they thought big! 
OSCAR’s staff member Jessica, who lives in the same village and is normally found writing funding bids to trusts and foundations, found herself at the front of her first big in-person fundraising event. She shares what that was like – and encourages you to do the same!

Jessica and Ellia

Dartmoor

On Saturday 11th July, 63 walkers of all ages trekked across Dartmoor in the searing heat with very little shade. We had a blast.

We had no injuries and we even reached our checkpoints on time. Don’t laugh – I am a logistics person and things like this are important to me.

You can get caught up in all the detail of making an event like this work (all essential detail, of course) and how much it will raise (read on to find out), but what I discovered that was even more important than a good risk assessment or if all the medals and t-shirts arrived in the right place was a shared sense of being part of something much bigger than walking a long way across part of the country. I kind of knew I would discover this. Meeting a group of people who really wanted to make a difference because a little girl in our community wanted to give back to help other children affected by brain tumours was just beyond special, and something that I will never lose the feeling of, nor ever want to.

Family fundraising

Family fundraising

The Dartmoor Family Challenge was an opportunity for a family that our charity supports to give back. An opportunity for their loved ones to feel like they were doing something useful, something meaningful, something tangible to help other families living through this devastating diagnosis and the inevitable turmoil that it brings. I know from talking to many of the walkers how affected they have been by Ellia’s diagnosis and how helpless they have felt in terms of how to support the family. Many of them live far away, have families of their own, full-time jobs. They carry a sense of helplessness because, frankly, what can you do when your friend’s child gets a diagnosis like this?

Events like this give people a real opportunity to help, to give back, to make a genuine difference.

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Just one day

It was almost a year to the day that Ellia received her diagnosis. As Dan, Ellia’s dad, said in his opening speech, “It’s hot today and we’re going to be hurting at some points, but it’s short term pain. Ellia, on the other hand, has to go through this hurt every single day with chemotherapy and drugs she doesn’t want to take. It’s rubbish. If Ellia can go through that every day then we can do this for one day.”
 
And this is the same for all the children we support. They’re all on a journey they don’t want to be on. They’re visiting hospitals they don’t want to visit, taking drugs they don’t want to take and missing out on things they shouldn’t have to miss out on. It’s one of the reasons these walking challenges are important to us. We’re all lucky enough to be able to walk across Dartmoor. We get to choose to do this. And yes it might be hard but the challenge is worth it. Every time.
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Fundraising firsts

For many of us, the day provided some firsts. For me, the first time organising a big event (I’m usually found doing other fundraising, like bid writing or overseeing our individual monthly giving programme). For Ellia’s family, the first time they’d gathered their friends, family and schoolmates together to do something collectively. For some people, the first time they’d walked that far.

Of course it was daunting and I was definitely tired after 17 kilometres although I didn’t notice that until the day after. There were a lot of logistics to think about, particularly because of the forecast and the lack of shade on Dartmoor. Making sure all the jigsaw pieces of an event are in the right box let alone the right place is tricky, but the experienced staff at OSCAR’s guided me in the background and Moorland Guides did the same to keep us safe on the walk. 

Having not done anything like this before, either as a participant or an organiser, I can honestly say it was fantastic. Walking meant I got to talk to everyone throughout the day and felt a real shared sense of purpose. As opposed to when I go running and there is no time to stop and chat. Event organising is not my forté but with Moorland Guides’ support, as well as other staff members and of course Ellia and her family, it all felt very manageable.
Oh, and with other associated fundraising organised by Ellia, Dan, family and friends this fundraising first managed to raise an astonishing £19,317. One day that will make years of difference to those who need the support of OSCAR’s.

Dartmoor fundraising 1

Your turn?

If you’re thinking of doing something like this yourself, please get in touch by emailing info@oscarscharity.org. We would love to support families up and down the country to replicate this type of event in their area.

And if you aren’t quite up to sorting it yourself just yet…then the 10th Annual OSCAR’s Walking Challenge takes place on May 2nd 2027. The Giants Trail is made-up of two walks for you to choose from of near-marathon and half-marathon distance. You can learn more and sign-up by clicking the link.
I’ve got the long-distance walking bug now and have signed-up already! 

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Do you need any help or assistance?

Rachel James

Community Fundraising Assistant
Rachel will join our team on September 1st and will be doing a wide range of tasks including promoting the charity in the local community, developing relationships with different people and organisations, and finding new fundraising opportunities. She comes from a caring background having been a teaching assistant and emotional literacy support assistant in York for many years, and previously leading a community care team. She has also done many years of work in the voluntary sector.

Matthew Taylor

Trustee

Matthew Taylor is Director of the York Health Economics Consortium at the University of York. He has been a supporter of OSCAR’s since its inception and, through his twenty years of research into the measurement of health-related quality of life, Matthew is keenly aware of the huge benefits that new treatments can bring to people living with brain tumours.

Matthew is actively involved in national-level healthcare decision making, having had former roles as the Scientific Director of the National Institute for Health and Care Excellence (NICE)’s Economic and Methodological Unit and as a committee member for NICE’s Public Health Advisory Group. He has over fifty peer-reviewed scientific publications, including a chapter in the textbook ‘The Business, Policy and Economics of Neurosurgery’.

Ryan Mathew

Clinical Trustee

Ryan Mathew is an Associate Professor at the University of Leeds and an Honorary Consultant Neurosurgeon at Leeds Teaching Hospitals.

The Hughes Family story had a big impact on Ryan. He first learnt of the charity when he became surgeon to Oscar’s dad, Ian. After a successful surgery, he continued to show great care and concern for the family when Ian became ill again and when Milo, Oscar’s brother, was diagnosed with a brain tumour. Ryan is driven to make life outcomes better for brain tumour patients and their families. His extensive work in both research and surgery is testament to that commitment.

His clinical practice covers the full spectrum of general neurosurgery with a subspecialty in brain tumours. His research focuses on advanced brain tumour models, residual therapy-resistant glioma cell populations, local therapeutic treatments and surgical technologies and devices. He peer-reviews for several journals and grant award committees and has published numerous papers.

More information on Ryan’s work

Lisa Dawson

Trustee

Lisa has been a friend of the Hughes family since 2016 and was honoured to be asked in 2022 to represent OSCAR’s PBTC as Social & Digital Trustee.  Both Lisa and her family have taken part in numerous fundraising events and are dedicated to raising awareness of paediatric brain tumours.  Lisa is a social media content creator, blogger and writer and lives in York with her husband Joe and three children, Ella, Max and Leo.

Alice Beckwith

Trustee

Alice has been involved with OSCAR’s PBTC since 2020. She passionately supports the aims of the charity and believes that if the charity can change one life for the better, then it is a success. Working in the public sector for 18 years, Alice has helped transform Adult and Children’s Social Care Services by ensuring heavy investment in preventative services. This is why the impact OSCAR’s work will have on families is at the forefront of Alice’s motivation to be involved.

As partnerships trustee, Alice is keen to involve businesses, trusts and individuals in the work OSCAR’s does and show them the role they can have in providing the base for the charity to continue to expand its projects to help children with brain tumours.

Sarah Jane Gray

Trustee/Secretary

Sarah has over 20 years of experience in the pharmaceutical and surgical sales sector and is very familiar with the importance of medical advancements for better patient outcomes. She believes research is essential for improving diagnosis, treatment and prognosis for all children with brain tumours and hopes OSCAR’s PBTC can offer much needed funding to help push the boundaries in finding better ways of curing this devastating disease. Sarah’s focus as a treasurer will ensure record-keeping and accounts meet the conditions of the statutory bodies and compliance with regulatory organisations.

Holly Dixon

Trustee

Holly is mother to George, diagnosed with an ATRT brain tumour in 2022, and works as a primary school teacher. She believes that action to support others -however small- can make a massive difference.


She brings real-life experience of what it is like for a parent navigating everyday life, the NHS, the education system, questions from people and a lively young child with different needs.

meet the oscar's team

Sam Marino

Trustee

Marie Hughes

ChAIR OF THE BOARD OF TRUSTEES

Marie founded the charity with her husband Ian, who passed away in 2020. She is the mother of four boys. Two of Marie’s sons have died from different types of brain tumours – Oscar who was 9 and Milo who was 5 years old. She is determined to help find better treatments for brain tumours so other children won’t have to go through what her own sons and her family have.

Marie is Chair of the Board of Trustees, working closely withe the team on strategy and vision. Marie lives in Copenhagen with her two other sons, Sebastian and Lucas, and works as a Risk Manager on the Danish railway.