Medulloblastoma tumours

Useful Information

What is a medulloblastoma?

Being told your child has a brain tumour can be overwhelming, and the specific diagnosis will immediately launch a thousand questions about what it all means. We’re here to answer your questions.

What is Medulloblastoma?

Medulloblastoma is the most common malignant (cancerous) brain tumour in UK children. They usually develop at the back of the brain in the cerebellum, which is the part of the brain controlling movement, balance and coordination.

Medulloblastomas are high grade (fast-growing) and can spread (metastasize) to other areas of the brain and spinal cord. They are most commonly diagnosed in children between the ages of three and eight years, and more often in boys than girls. Around 52 children are diagnosed with medulloblastoma each year.

Read More

Medulloblastoma Signs and Symptoms:

The most common symptoms are:

  • Headaches (usually in the morning)
  • Nausea
  • Double vision
  • Issues with balance; such as finding it hard to sit or stand unsupported, or your child might fall backwards.
  • Fatigue or lack of energy
  • Loss of appetite
  • Nausea and vomiting

These symptoms can vary depending on the tumour’s position and pressure it may exert on the brain.

To find out more about the different signs & symptoms of brain tumours – Click here

Read More

What kind of tests will my child have?

To diagnose a medulloblastoma, your doctor will run some tests to figure out the size and location of the tumour.

The tests could include:

  • MRI scan and/or CT scan
  • Lumbar puncture
  • Biopsy

For more information about testing for brain tumours – Click here

Read More

What are the treatment options for my child?

A specialist medical team will put together a tailored treatment plan based on your child’s unique needs, but the main ways to treat a medulloblastoma are:

  • Surgery
  • Radiotherapy
  • Chemotherapy

For more information about the different types of treatment – Click here

Read More

We hope this page helps you feel informed and supported on your path with medulloblastoma. At OSCAR’s we’re here for you every step of the way, offering hope, encouragement, and resources to help you and your loved ones face this challenge with courage and resilience. Remember, you are not alone.

Do you need any help or assistance?

Rachel James

Community Fundraising Assistant
Rachel will join our team on September 1st and will be doing a wide range of tasks including promoting the charity in the local community, developing relationships with different people and organisations, and finding new fundraising opportunities. She comes from a caring background having been a teaching assistant and emotional literacy support assistant in York for many years, and previously leading a community care team. She has also done many years of work in the voluntary sector.

Matthew Taylor

Trustee

Matthew Taylor is Director of the York Health Economics Consortium at the University of York. He has been a supporter of OSCAR’s since its inception and, through his twenty years of research into the measurement of health-related quality of life, Matthew is keenly aware of the huge benefits that new treatments can bring to people living with brain tumours.

Matthew is actively involved in national-level healthcare decision making, having had former roles as the Scientific Director of the National Institute for Health and Care Excellence (NICE)’s Economic and Methodological Unit and as a committee member for NICE’s Public Health Advisory Group. He has over fifty peer-reviewed scientific publications, including a chapter in the textbook ‘The Business, Policy and Economics of Neurosurgery’.

Ryan Mathew

Clinical Trustee

Ryan Mathew is an Associate Professor at the University of Leeds and an Honorary Consultant Neurosurgeon at Leeds Teaching Hospitals.

The Hughes Family story had a big impact on Ryan. He first learnt of the charity when he became surgeon to Oscar’s dad, Ian. After a successful surgery, he continued to show great care and concern for the family when Ian became ill again and when Milo, Oscar’s brother, was diagnosed with a brain tumour. Ryan is driven to make life outcomes better for brain tumour patients and their families. His extensive work in both research and surgery is testament to that commitment.

His clinical practice covers the full spectrum of general neurosurgery with a subspecialty in brain tumours. His research focuses on advanced brain tumour models, residual therapy-resistant glioma cell populations, local therapeutic treatments and surgical technologies and devices. He peer-reviews for several journals and grant award committees and has published numerous papers.

More information on Ryan’s work

Lisa Dawson

Trustee

Lisa has been a friend of the Hughes family since 2016 and was honoured to be asked in 2022 to represent OSCAR’s PBTC as Social & Digital Trustee.  Both Lisa and her family have taken part in numerous fundraising events and are dedicated to raising awareness of paediatric brain tumours.  Lisa is a social media content creator, blogger and writer and lives in York with her husband Joe and three children, Ella, Max and Leo.

Alice Beckwith

Trustee

Alice has been involved with OSCAR’s PBTC since 2020. She passionately supports the aims of the charity and believes that if the charity can change one life for the better, then it is a success. Working in the public sector for 18 years, Alice has helped transform Adult and Children’s Social Care Services by ensuring heavy investment in preventative services. This is why the impact OSCAR’s work will have on families is at the forefront of Alice’s motivation to be involved.

As partnerships trustee, Alice is keen to involve businesses, trusts and individuals in the work OSCAR’s does and show them the role they can have in providing the base for the charity to continue to expand its projects to help children with brain tumours.

Sarah Jane Gray

Trustee/Secretary

Sarah has over 20 years of experience in the pharmaceutical and surgical sales sector and is very familiar with the importance of medical advancements for better patient outcomes. She believes research is essential for improving diagnosis, treatment and prognosis for all children with brain tumours and hopes OSCAR’s PBTC can offer much needed funding to help push the boundaries in finding better ways of curing this devastating disease. Sarah’s focus as a treasurer will ensure record-keeping and accounts meet the conditions of the statutory bodies and compliance with regulatory organisations.

Holly Dixon

Trustee

Holly is mother to George, diagnosed with an ATRT brain tumour in 2022, and works as a primary school teacher. She believes that action to support others -however small- can make a massive difference.


She brings real-life experience of what it is like for a parent navigating everyday life, the NHS, the education system, questions from people and a lively young child with different needs.

meet the oscar's team

Sam Marino

Trustee

Marie Hughes

ChAIR OF THE BOARD OF TRUSTEES

Marie founded the charity with her husband Ian, who passed away in 2020. She is the mother of four boys. Two of Marie’s sons have died from different types of brain tumours – Oscar who was 9 and Milo who was 5 years old. She is determined to help find better treatments for brain tumours so other children won’t have to go through what her own sons and her family have.

Marie is Chair of the Board of Trustees, working closely withe the team on strategy and vision. Marie lives in Copenhagen with her two other sons, Sebastian and Lucas, and works as a Risk Manager on the Danish railway.